Episodes
Monday Jul 01, 2019
03: Stand By Eli
Monday Jul 01, 2019
Monday Jul 01, 2019
Imagine being told that your child has a rare neurodegenerative disorder and it's so rare that it doesn't even have a name. This is the reality for Sam & Ben Kadkhoda's son, Eli, who is 5 years old. With no cure and no treatment, this disease leaves children in a paralysis-like state by age 20 – losing the ability to walk, eat and move. Join us to listen to the Kadkhoda’s inspiring story, and how one determined mother is making bold moves to single-handedly fund research and spread awareness to make a difference in the lives of those impacted by this disease. To donate, please visit www.standbyeli.org.
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